A survey for people with COPD, and their caregivers

The Government of Ontario has initiated a process to allow patients and their caregivers to contribute to the province’s drug review process. Ontario’s Committee to Evaluate Drugs, in their consideration of drug approvals and funding, is interested to understand the real impact that diseases and their treatments have on the daily lives of patients and caregivers. The way patients and caregivers can contribute to the process is by providing their personal experiences to registered Patient Advocacy Groups. When a drug is up for review in Ontario, registered Patient Advocacy Groups can make a submission on behalf of a group of patients. The goal of such submissions is to help the Committee to Evaluate Drugs to understand the personal implications of the illness and its treatments. The Ontario Lung Association is pleased to be registered as a Patient Advocacy Group to help provide patients and their caregivers a voice in the consideration of medications related to lung disease. The following survey has been created to collect information from individuals with COPD and from their caregivers. The questions have been designed to determine how COPD affects your lives. Information received will be submitted to the Committee to Evaluate Drugs to inform their consideration of a COPD drug called Indacteral Maleate (Onbreze) that is indicated treating COPD. This is an important way for your voice to be heard with the Government of Ontario to help with key decisions that affect lung health. In order to add your voice to this process, please complete this survey by Thursday, September 6, 2012 Further, to help improve the patient submission, please share the link to this survey with anyone you know who is living with or caring for someone with COPD. If you have any questions about the process or further input you wish to provide about living with, or caring for someone with COPD, please call the Ontario Lung Association’s Lung Health Information Line at 1-888-344-LUNG (5864).