2015 PH Environmental Scan

0% of survey complete

Introduction

Pulmonary arterial hypertension (PAH), a subcategory of pulmonary hypertension (PH), is a rare and progressive disease with no known cure. The prevalence is estimated to be between 15 and 50 cases per 1 million adults. 1 The pathophysiology is still not well understood and causes of PAH are numerous. Despite recent advances in therapy, the 5-year mortality of patients with PAH remains as high as 40%. Disease management through multi-disciplinary community care clinics has been shown to improve patient outcomes in different health conditions, including heart failure, diabetes, chronic kidney disease, and cancer. The potential benefits of a multi-disciplinary strategy include improved utilization and compliance with evidence-based therapies. It is unclear if specialized PH clinics are multidisciplinary and provide similar services. We have aimed to gain a better understanding of the demographics, services and scope of practice of PH clinics internationally. The information gained will allow for a more targeted approach to identify needs and provide further learning strategies to develop a comprehensive format optimizing the use of a multidisciplinary team to create centers of excellence.

Methods

Starting with the international PH nurses workshop to introduce the environment scan questionnaire, this will followed by further identifying other Specialty PH Clinics internationally. The questionnaire will then be sent to each clinic to understand the demographics, services offered and scope of practice of the individual components of their multidisciplinary team.