The Arc's Caregiver Assessment of Health Status of People with Intellectual Disability

The Arc, a national nonprofit organization for people with intellectual and developmental disabilities is seeking to find out more about caregiver views of the health status of the people with intellectual disability for whom they provide care as part of our HealthMeet project.  This project aims to help identify and reduce health disparities among people with intellectual disability.

This survey has two goals. First, this survey can be used as a checklist to help you evaluate any "red flag" health concerns that you may have about the person for whom you provide care. This checklist should not be used in place of seeing a doctor when you have concerns.

Second, the concerns that you have identified and the information you provide will be used to find out more about caregivers and health concerns that impact people with intellectual disability. By using this checklist, you give The Arc permission to use this information to help better understand and evaluate health issues impacting people with intellectual disability and their caregivers.

The information provided in this survey is confidential and will never be used to identify someone specifically.  You will have the opportunity to provide contact information if you choose to do so.  This information will only be used to send accessible health resources to you. 

If you have any questions about this survey, please contact Jennifer Sladen at  To find out more about The Arc, our HealthMeet project, and our work to serve people with intellectual disability and their families, visit

*This survey is adapted from the following:  Adapted from Marks, B., Sisirak, J., & Heller, T. (2010). Health Matters: Establishing Sustainable Exercise and Nutrition Health Promotion Programs for Adults with Developmental Disabilities. Brookes Publishing: Philadelphia. All rights reserved. Adapted with permission from Marks, B., Sisirak, J., & Plachy, T. (2007). Head-to-Toe Sign and Symptoms Checklist for Lay Health Workers. HealthMatters Program 2012, Chicago, IL.

0% of survey complete

This user's FluidSurveys is no longer active. Please visit for more information.